The Albert Memorial is still there

comment on the news of the day & other things

Hello

This is simon gray's blog. On it I write mostly commentary on the news of the day, but sometimes I write about other things too. Why's it called 'The Albert Memorial is still there'? It's after a James Burke documentary series 'The Real Thing' in which in one episode as a television news reporter he files a live report announcing that the Albert Memorial is still there - seconds later, it blows up.

Raising awareness

So, whilst people have been bullying other people in to ‘raising awareness of’ and donating money to research into motor neurone disease, here are some other diseases most people have almost certainly never heard of:

Lupus Erythematosus – a disease which is like an allergic reaction but magnified 100-fold, where the body’s immune system attacks itself. there’s no known cure, and precious little treatment. and there isn’t a great deal of research being done. https://en.wikipedia.org/wiki/Lupus_erythematosus

Raynaud’s Phenomenon is a condition of drastically reduced blood flow to the hands and feet; in mild episodes the person who has it’s hands will turn white, whilst particularly bad episodes will be accompanied by severe pain – think pins and needles magnified 100-fold. https://en.wikipedia.org/wiki/Raynaud%27s_phenomenon

Endometriosis is a condition affecting some women where cells which normally only appear in the lining of the uterus develop outside that area, causing severe pain and distress to the person who has it. Currently there is no cure, with treatment again patchy, some of it drastic. https://en.wikipedia.org/wiki/Endometriosis

Fibromyalgia is a disease often related to Chronic Fatigue Syndrome, but with the severe tiredness being compounded with frequent episodes of severe pain, difficulty swallowing, and ‘foggy brain’. It’s very difficult to diagnose, its cause is unknown, and the best medical science can currently do for it is symptom management. https://en.wikipedia.org/wiki/FibromyalgiaChronic Fatigue Syndrome, formerly known as Myalgic Encephalomyelitis, itself is a condition which appears suddenty out of nowhere like a thief in the night; it’s not just tiredness, it’s unbelievable tiredness. Medical science has only relatively recently even recognised it as a genuine condition – in the 1980s it was usually referred to as Yuppie Flu. https://en.wikipedia.org/wiki/Chronic_Fatigue_Syndrome

Anorexia Nervosa most people have admittedly heard of as being described as a condition affecting young women and usually being described in the media as ‘the slimmers’ disease Anorexia Nervosa'; where there’s less awareness of it in society is that it also affects young men, and has precious little to do with ‘slimming'; amongst the many manifestations of it, it’s probably more accurate to think of people with it as being unable to see how dangerously thin they have become than thinking of them as seeing themselves as fat. Because many of the behaviours associated with it are hidden and many of the physical symptoms are shared with other conditions, diagnosis is a complex and sometimes drawn out affair, especially in young men, with treatments similarly complex. https://en.wikipedia.org/wiki/Anorexia_nervosa

Of course, there’s nothing wrong with fundraising for and raising awareness of a disease about which there’s actually quite a high level of awareness of already, and which despite some of the publicity there’s a fairly healthy research programme into. I hope this has helped raise awareness of some of these other lesser-known conditions. Here are some charities working on behalf of people with them:

Saying free schools being able to opt out of the national curriculum defeats the point of free schools is like saying free schools being able to opt out of the national curriculum defeats the point of the national curriculum. oh, right.

Saying free schools being able to opt out of the national curriculum defeats the point of free schools is like saying free schools being able to opt out of the national curriculum defeats the point of the national curriculum. Oh, right.

#gallerycamp13 – A one day unconference for people who work in or have an interest in the contents of galleries

On Monday 9 September I went to Gallerycamp – a one day unconference for people who work in, provide content for, or are otherwise interested in the future of galleries, with a special focus on how they might make more use of that thing we nebulously call ‘digital’, or ‘new technologies’. Just as it’s often […]

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